Skip to content
Since April 2019

Our Story

The association was born from a need to bridge the gap in responses for children with special needs during childhood and/or adolescence. A story of love, resilience and community — which began on 7th April 2019 in a maternity hospital in Viana do Castelo.

Leonor wearing an ASLA t-shirt, full of courage and hope
O caminho

Leonor’s story

Every moment of this journey has shaped who we are today as a family and as an association

  1. 2018 – 2019

    A pregnancy full of hope

    The pregnancy proceeded in a calm and largely uncomplicated way. The family joyfully awaited the arrival of Leonor, the younger sister of a boy who was then 7 years old. The only unusual sign was a slightly below-expected weight in the final scans — a detail that, at the time, did not raise significant medical concerns.

    Nothing could have predicted what was about to happen.

  2. 7th April 2019 · Viana do Castelo

    The day Leonor arrived

    Leonor was born at the Unidade Hospitalar do Alto Minho, in Viana do Castelo, from her home of Viatodos, Barcelos, in the heart of Minho.

    At the moment of delivery, she suffered a hypoxic-ischaemic neonatal anoxia — a critical deprivation of oxygen to the brain during birth. The consequences were immediate and irreversible: cerebral palsy with total incapacity.

    But Leonor held on. And that smile which insisted on appearing from the very first days was the sign that the fight would continue.

    Leonor full of joy, radiating life and strength
  3. 2019 – 2020

    The diagnosis and first steps

    Our golden girl suffered a case of hypoxic-ischaemic neonatal anoxia — Leonor's brain was deprived of oxygen following a very complicated delivery, which resulted in severe sequelae that compromised her quality of life, leading to a 100% disability.

    Against all expectations — which had foreseen the worst possible outcomes — our little warrior continues to fight for a better life. Every achievement — a look of recognition, a smile in response, a voluntary movement — is celebrated as an enormous victory by the family and by all those around her.

  4. 2020 – 2021

    Our reality and the community that responds

    As a family, we have been faced with an enormous absence of social responses for children and young people with high degrees of disability. Existing services are overcrowded, and the demand for NHS-funded therapeutic responses means that personalised treatment must be carried out privately, at great cost to families.

    As a result, one of the parents was forced to give up work to meet these needs. Leonor's story began to spread by word of mouth throughout Barcelos and beyond — and the community responded with affection, donations, recyclable packaging and hours of volunteering.

    It became clear that this collective impulse needed a structure. It needed a name, a purpose, a way to grow and to reach further.

    Participants of the ASLA solidarity walk in Barcelos
  5. ASLA Founded

    The Associação Sorriso Leonor e Amigos is born

    The ASLA — Associação Sorriso Leonor e Amigos was founded with a clear purpose: to centralise and amplify support for Leonor and for other children with special needs and their respective families who, like Leonor's family, often feel alone in the face of a lack of responses.

    The name says it all. The smile belongs to Leonor — and the friends are all of us.

  6. 2024 – 2026

    Leonor today — and the road ahead

    Leonor, born on 7th April 2019, continues to surprise everyone around her. With the support of specialist therapies, adapted equipment and, above all, the love of her family and an entire community, Leonor grows, communicates in her own way and fills with light every room she enters.

    The fight continues — for better therapies, for more equipment, for greater inclusion. But it is no longer a solitary fight.

    Leonor with her parents in a moment of joy and togetherness

Leonor is not alone — ASLA supports other children just as extraordinary as she is.

Meet the Butterflies of Inclusion

The impact on the family

Caring for Leonor is an act of love by an entire family

Leonor has an older brother (born on [DATE OF BIRTH — to be confirmed]), who has grown up learning the meaning of words like empathy, patience and sharing in a way that few young people have the opportunity to experience. He is one of the family's greatest supporters — and one of his sister's biggest fans.

But the reality of having a child with such profound special needs brings with it challenges that go far beyond the physical and the financial. Emotional exhaustion, the need to always be present, managing expectations and the silent grief of a future imagined differently are all parts of this journey that society rarely sees.

ASLA does not exist only for Leonor. It also exists for the parents, the brother and all the families who share similar challenges — because the support that truly makes a difference is the kind that thinks of the whole family, not only the child.

That is why the association also invests in social gatherings, in sharing experiences between families and in building a mutual support network that goes beyond material assistance.

"There are hard days, of course there are. But when we look at Leonor's smile, we remember why. And that is enough."
[Family quote — to be confirmed]
"Together we are stronger —
and the journey is lighter when we walk it side by side."

How ASLA was born

From a real need, a collective mission was born

The Associação Sorriso Leonor e Amigos was born from the recognition that families of children with special needs face, alongside the medical and therapeutic challenges, a chronic lack of responses from the system — long waiting lists, insufficient support, expensive and inaccessible equipment, and little space to share experiences with other families living through the same thing.

ASLA came to fill these gaps. One of the association's milestones is the Solidarity Protocol Project, initially established by another association and later transferred to ASLA. After much effort, the association acquired its own vehicle with all safety equipment, insurance and authorised staff. This allows ASLA to support other families by collecting recyclable materials from yellow bins in partnership with Resulima — raising funds for therapies, orthopaedic materials, food and specific medication not covered by the health system.

But more than material resources, ASLA wants to be a community. A place where no family feels alone, where stories are shared and where love flows in every direction.

The mission is simple — and it is also our motto:

What We Want to Achieve

Our main focus is to provide a better quality of life for Leonor and other children

  1. Collection and fundraising through recyclables

    We were born with the goal of raising funds through the collection of recyclable materials from yellow bins, establishing a protocol with the company Resulima.

  2. Activities during school holidays and free time

    To ensure the necessary response for children and young people with a high degree of disability who depend entirely on daily care, providing appropriate support for all their activities.

  3. Partnerships with public and private spaces

    To demystify disability by finding practical solutions so that children can enjoy a life more in line with the general norms of society.

  4. Cultural activity coordinator

    We seek the appointment, by the local council, of a cultural activity coordinator to provide free-time support and respond to periods when school is unavailable.

  5. Hiring of therapists

    To recruit therapists and establish a partnership between the association, the local council and families, making access to therapies more equitable.

  6. Programme 2030

    To seek funding through the 2030 programme, ensuring sustainable financing for the association's activities and projects.

  7. Dedicated therapy space

    To bridge the gap left by the National Health Service and public bodies by providing a dedicated physical space for therapies.

  8. Experience sharing and document support

    To provide a space where families can share experiences with one another, as well as offering support with the completion of official documents and applications.

  9. Adapted sports

    To provide a space where adapted sports can be practised using equipment suited to the specific condition of each child or young person.

  10. Training sessions for families

    To organise training sessions with nurses and psychologists directed at families of heavily dependent individuals, where they can feel supported and understood.

Quem Somos

As vozes e os corações por detrás da ASLA

Ana Rita Garcia Fernandes, Presidente da Associação Sorriso Leonor e Amigos
Presidente da Associação

Ana Rita Garcia Fernandes

"Nascida em 1987, sou mãe, cuidadora informal e Presidente da Associação Sorriso Leonor e Amigos (ASLA). A minha história não começou com a criação de uma associação. Começou no dia em que recebi nos braços a minha filha, Leonor, uma menina especial que viria a mudar a minha vida para sempre. Com uma incapacidade de 100%, a Leonor ensinou-me o verdadeiro significado da força, da resiliência e do amor incondicional.

Ao longo dos anos, enfrentei medos, incertezas, noites sem dormir e momentos de profunda solidão. Muitas vezes senti que estava perdida, sem respostas e sem o apoio de que tanto precisava. Mas foi precisamente dessa dor que nasceu um sonho.

A ASLA surgiu do amor de uma mãe pela sua filha, um amor tão grande que ultrapassou as barreiras da minha própria história para abraçar outras famílias que vivem desafios semelhantes. Prometi a mim mesma que nenhuma mãe, nenhum pai e nenhuma família deveriam sentir-se tão sós e desamparados como eu me senti em alguns dos momentos mais difíceis da minha caminhada.

Hoje, através da Associação Sorriso Leonor e Amigos, luto diariamente para levar esperança, apoio, compreensão e carinho a quem mais precisa. Cada sorriso conquistado, cada família acolhida e cada gesto de solidariedade são a prova de que, mesmo nas maiores dificuldades, o amor pode transformar vidas.

Porque a Leonor não mudou apenas a minha vida — mudou também a vida de todos os que escolheram caminhar ao nosso lado sem desanimar. Através dela, nasceu uma missão: fazer com que nenhuma família caminhe sozinha.

E é esse amor, transformado em força e dedicação, que continua a iluminar o caminho da ASLA todos os dias. Juntos, queremos continuar a lutar pela inclusão das nossas borboletas 🦋"

Juliana José Novais Pinheiro, Presidente do Conselho Fiscal da Associação Sorriso Leonor e Amigos
Presidente do Conselho Fiscal

Juliana José Novais Pinheiro

"Conheço a Leonor desde que nasceu e, ao longo dos anos, tive o privilégio de acompanhar um pouco do seu crescimento, das suas conquistas e também dos desafios que enfrenta diariamente. Foi através dela que passei a olhar para a deficiência de uma forma diferente.

A Leonor ensinou-me que as limitações não definem uma pessoa; o que a define é a sua capacidade de sorrir, de superar obstáculos e de inspirar quem a rodeia.

Ao entrar para a ASLA, percebi que era uma oportunidade de contribuir para uma causa que já tinha tocado o meu coração. Quis fazer parte de uma associação que apoia crianças e jovens, assim como as suas famílias, ajudando a construir uma sociedade mais inclusiva, mais justa e mais humana.

Cada momento que passo na ASLA reforça a certeza de que tomei a decisão certa. A Leonor foi a inspiração que me trouxe até aqui, mas são todas as crianças, jovens e famílias da associação que me motivam a continuar.

Acredito que pequenas ações podem fazer uma grande diferença na vida de alguém. É por isso que tenho orgulho em fazer parte da ASLA."

Rosa Barbosa, Secretária da Associação Sorriso Leonor e Amigos
Secretária

Rosa Barbosa

"O meu nome é Rosa Barbosa, nasci a 1 de novembro de 1980, vivo em Braga e sou técnica ocular. Identifico-me com esta causa porque acredito que todas as crianças merecem apoio, inclusão e oportunidades. É um orgulho fazer parte de uma associação que faz a diferença na vida de várias famílias."

Would you like to be part of this story?

There are many ways to help — from a donation, to donating recyclables, to volunteering. Discover how you can contribute.